In an odd way we’re celebrating the past 3 1/2 weeks at the Arms home. A little shift here and a little tweak there and suddenly definitions, priorities and expectations have all changed.
If you know me at all – you know I love really deep hours long conversation …. I honestly believe communication is a love language. Thad is filling my tank with little things: his humor, a laugh, asking for help, sitting on the couch, coloring, holding my hand in mostly dark silence … Saying I love you and thank you with just a look that I knew was for me alone.
So grateful that in the midst of a lot of uncertainty and unknowns God is still on the throne …. And the cool part – I can curl up in His lap and dump, laugh, cry, panic, celebrate, and sleep.
This is a season for us to learn more about patience, trust, and just being in the right here right now. I’m getting better about accepting help and still struggle to figure out what help I/he/we need. Y’all His provision is so far beyond what any of us can comprehend! People praying; bringing toilet paper; providing meals; Plexus; laughter; friend’s shoulders; emotions … I am truly overwhelmed at just how much God loves us. It is the most incredible feeling to bask in peace that surpasses all understanding.
We had another doctor appointment today. He is mostly where the doctor expects him to be and there is some progress. We continue to *wait* for God’s perfect timing for Thad’s complete healing. We are both very quick to pray through the pain – both the constant daily and the spikes. A few highlights:
- He is still supposed to lay low and get plenty of rest. He is currently able to stay awake for 2-3 hours at a time averaging 6-8 hours a day. Coloring is good for almost 10 minutes before his eyes get tired.
- He has not progressed to being left alone yet mostly because of the dizziness and vertigo. We will be doing an MRI to see if there is anything else contributing those issues. No unassisted walking … He is grateful I’m the perfect size to be his human walker .
- Still need minimal lights – think candles – lots of candles.
- Still no screens and very little use of anything that plugs in or uses a battery – he did listen to the final few innings of the Cubs wining the World Series. He is beyond ready for the ringing in his ears to stop too.
- Language is trying to get better so we are able to have more conversations. stuttering is the biggest issue. When he is tired or mentally exhausted, is when things tend to deteriorate.
I love you Thad! Thanks for resting your brain to get fully healthy again. Thanks for praying for us out loud today. Thanks for the smiles, tears and honesty as you make your way to healed. You are definitely my love no matter what!
